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Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick, by Maya Dusenbery
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Review
“Ever since the centuries of burning women healers as witches, because they taught women how to govern our own bodies, thus to control reproduction—the medical world hasn’t included all of humanity. Doing Harm shows what is left to be done, and directs both women and men toward healing.” (Gloria Steinem)“Maya Dusenbery’s exhaustively researched book is equal parts infuriating and energizing. No woman will see the medical establishment, and perhaps even more profound, her own body, the same way after reading it. In a just world, it would be required reading in medical schools from this day forward.” (Courtney E. Martin, author of Perfect Girls, Starving Daughters)“Maya Dusenbery brings new life to one of the most urgent yet under-discussed feminist issues of our time. Anyone who cares about women’s health needs to read this book.” (Jessica Valenti, author of Sex Object)“Dusenbery challenges a new generation of women and practitioners to fight for medical equity—shinning a harsh light on the sex bias that pervades every level of medicine. It’s outrageous that such malignant neglect exists more than two decades after the government acknowledged the gaps in knowledge about women’s health.” (Leslie Laurence, co-author of Outrageous Practices)“In this groundbreaking book, Maya shows how the same forces that hold women back in society more broadly lead to sub-par medical care and inadequate attention to health issues that impact women. Every doctor, scientist, health care provider and researcher should read this book. And so should every woman.” (Jill Filipovic, author of The H-Spot)“Doing Harm is a deeply researched and very readable exploration of the systematic mistreatment of women in our medical system—and how even those with the best intentions perpetuate it. This book is an eye-opener; may it also be a call for real, sustained change.” (Kate Harding, author of Asking For It and co-editor of Nasty Women)“An intensive, timely spotlight…Within an organized, well-balanced combination of scientific and social research and moving personal stories, Dusenbery makes a convincing case for the need for drastic industry reform and clinical refinement.” (Kirkus )“Dusenbery’s excellent book makes the sexism plaguing women’s health care hard to ignore…skillfully interweaving history, medical studies, current literature, and hard data to produce damning evidence that women wait longer for diagnoses, receive inadequate pain management, and are often told they are imagining symptoms that are taken seriously in men.” (Publishers Weekly, starred review)“Editor’s Choice by the New York Times” (No Source)“As seen on FRESH AIR” (No Source)
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From the Back Cover
Editor of the award-winning site Feministing.com, Maya Dusenbery brings together scientific and sociological research, interviews with doctors and researchers, and personal stories from women across the country to provide the first comprehensive, accessible look at how sexism in medicine harms women today. In Doing Harm, Dusenbery explores the deep, systemic problems that underlie women’s experiences of feeling dismissed by the medical system. Women have been discharged from the emergency room mid-heart attack with a prescription for anti-anxiety meds, while others with autoimmune diseases have been labeled “chronic complainers” for years before being properly diagnosed. Women with endometriosis have been told they are just overreacting to “normal” menstrual cramps, while still others have “contested” illnesses like chronic fatigue syndrome and fibromyalgia that, dogged by psychosomatic suspicions, have yet to be fully accepted as “real” diseases by the whole of the profession. An eye-opening read for patients and health care providers alike, Doing Harm shows how women suffer because the medical community knows relatively less about their diseases and bodies and too often doesn’t trust their reports of their symptoms. The research community has neglected conditions that disproportionately affect women and paid little attention to biological differences between the sexes in everything from drug metabolism to the disease factors—even the symptoms of a heart attack. Meanwhile, a long history of viewing women as especially prone to “hysteria” reverberates to the present day, leaving women battling against a stereotype that they’re hypochondriacs whose ailments are likely to be “all in their heads.” Offering a clear-eyed explanation of the root causes of this insidious and entrenched bias and laying out its sometimes catastrophic consequences, Doing Harm is a rallying wake-up call that will change the way we look at health care for women.
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Product details
Paperback: 400 pages
Publisher: HarperOne; Reprint edition (March 12, 2019)
Language: English
ISBN-10: 0062470833
ISBN-13: 978-0062470836
Product Dimensions:
5.3 x 0.9 x 8 inches
Shipping Weight: 9.9 ounces (View shipping rates and policies)
Average Customer Review:
4.7 out of 5 stars
49 customer reviews
Amazon Best Sellers Rank:
#57,276 in Books (See Top 100 in Books)
A scathing indictment of the historic and current misogynist medical/research system. One example after another of women being dismissed, misdiagnosed, or undiagnosed until their tenaciousness finally gets them the answers. I have to say, it was painful to read because I resonated with so many of their stories, both about how some MDs have treated me, how big things (like my back being broken) were dismissed as "sciatica" for years, and the frustration of chronic fatigue, fibro, and migraine. Shoutouts to all the chronic disease warriors who contributed their stories. A must-read for every physician in the world, not just the US. It's a dense read (hence the 4 stars vs. 5), probably better for physicians than the general public, but anyone who identifies as female who has had frustrations with the medical system will feel validated reading or skimming it.
Maya Dusenbery’s “Doing Harm†uncovers the plight of women seeking healthcare. They are often ignored and dismissed, despite efforts toward an accurate diagnosis and effective treatment plan. Maya’s book describes why medical research has avoided attention to women and why current treatment is misaligned to meet female needs. Her book includes many stories of women who have battled our healthcare system in their pursuit of care, sometimes with tragic consequences. As a physician, medical coder/compliance officer/auditor and caregiver, I can attest to Maya’s findings. With lipstick, clean clothes and groomed hair, many medical providers instantly believe a woman looks and, therefore, feels fine. “Doing Harm†is a must read for medical providers, researchers and health policy makers. We owe it to our mother, sisters and daughters to improve female healthcare.Michael Warner, DO, CPC, CPCO, CPMAPresident, Patient Advocacy InitiativesDetailed discussion posted April 5, 2018 on the AAPC Knowledge Center, “Co-Author Your Medical Record With a PreHxâ€
This book moves our stories from disconnected anecdotes with little power to create change to quantified and substantiated experiences that collectively are dramatic, alarming, heartbreaking and motivating. She provides validation to our experiences and gives power to our voices. More importantly though, she looks underneath the pain to find the legacy, systemic and personal biases at play and through that begins to help us find a way forward. As we look to solve for the many factors driving healthcare costs up and outcomes down, this book should be required reading for everyone - those who work within the healthcare industry, those who regulate and legislate it and all those who are continuing to access it (or attempting to) in hopes of finding care and healing.
This book is absolutely a must read for anyone who is sick, in healthcare, or needs to learn how the healthcare system is so broken it leaves women more sick than they started. There are compelling anecdotes that I felt deep in my soul and tore at every ounce of empathy and compassion I have because I’ve been through this horrible system since I was a young child. This book is incredibly well researched and sourced, and I believe it should be read by every pre-med, nursing, public health, etc. student so that they can see how they can exacerbate problems or solve them. I listened to the audiobook through my library and then came back to buy the book because I think it’s so important, I’ll read it over and over again. If you’re sick and trying to find answers: read this book. If you’re in the healthcare industry: read this book. If you have a loved one who counts on you to be their advocate: read this book. If you have compassion for the struggles sick women go through: read this book. This isn’t a book that will cure your ails or be a miracle in terms of changing the path your sickness takes, but it will change your life in the sense that you’ll realize that you aren’t alone, you aren’t crazy, you can do this, and with all the systemic oppression sick women have experienced, it’s time to raise our voices to be heard and treated with dignity and respect, even when the answers don’t seem “rightâ€. This book shows how doctors have silenced and shut millions of sick women down, so much so that they’ve missed many important diseases and diagnoses that affect millions. This book doesn’t read like dry, medical non-fiction; I found it riveting from the start. The statistics are bleak and sad; the anecdotes are heart wrenching, but this book was written with those of us in mind who will hold onto it and say “wow, look how many women have had similar struggles†and how our doctors can learn to communicate, listen, and learn better through their patient’s experiences. I HIGHLY recommend this book for anyone and everyone that has ever spent more than 2 minutes in a medical facility.
This book is helping me to understand how I ended up not getting diagnosed with a life-long, genetic disease until I was 36 years old (despite having a family history and symptoms since toddlerhood), after the disease had taken much more of a toll on my body than necessary. More than that, It's a valuable description of how gender-based research and clinical trials can be and what the consequences and ramifications of that gender bias might be. I highly recommend this book to all women, anyone who loves a woman, and all healthcare providers.
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